Māori elders’ perspectives of end-of-life family care: whānau carers as knowledge holders, weavers, and navigators

Simple item page
dc.contributor.authorSimpson ML
dc.contributor.authorMcAllum, Kirstie
dc.contributor.authorOetzel J
dc.contributor.authorBerryman K
dc.contributor.authorReddy R
dc.date.accessioned2024-09-17T21:32:41Z
dc.date.available2024-09-17T21:32:41Z
dc.date.issued2022
dc.description.abstractBackground: There is growing interest in palliative care within Indigenous communities, and within Aotearoa New Zealand, of the significant role that Māori (Indigenous people) families play in caring for older relatives. This study explored the centrality of culture in how Māori extended families (whānau) in Aotearoa New Zealand interpret and enact family-based care roles within the Māori world (Te Ao Māori). Methods: Applying Māori-centered and community-based participatory research principles, we examined 17 interviews with older Māori who shared experiences of palliative care for a partner or family member. The thematic analysis used a cultural-discursive framework incorporating Māori principles of wellbeing and values expressed within the care relationship. Results: The findings centered on three whānau roles in palliative care: whānau as (1) Holders and protectors of Māori knowledge; (2) Weavers of spiritual connection; and (3) Navigators in different worlds. Conclusion: The study problematizes the notion of a single ‘primary caregiver’, privileges whānau as an inter-woven relational, dynamic care network, and encourages health professionals to recognize the cultural embeddedness of dominant approaches to palliative care.
dc.identifier.citationSimpson ML, McAllum K, Oetzel J, Berryman K, Reddy R (2022). Māori elders’ perspectives of end-of-life family care: whānau carers as knowledge holders, weavers, and navigators. Palliative Care and Social Practice. 16. 263235242211185-263235242211185.
dc.identifier.doihttp://doi.org/10.1177/26323524221118590
dc.identifier.issn2632-3524
dc.identifier.urihttps://hdl.handle.net/10092/107556
dc.languageen
dc.publisherSAGE Publications
dc.rightsCreative Commons Non Commercial CC BY-NC: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
dc.rights.urihttp://hdl.handle.net/10092/17651
dc.subjectcare roles
dc.subjectculture-centered approach
dc.subjectfamily care
dc.subjectIndigenous
dc.subjectkaumātua
dc.subject.anzsrc45 - Indigenous studies::4510 - Te hauora me te oranga o te Māori (Māori health and wellbeing)::451008 - Ngā wāhanga ora o te Māori (Māori life course)
dc.subject.anzsrc45 - Indigenous studies::4510 - Te hauora me te oranga o te Māori (Māori health and wellbeing)::451003 - Ngā tokoingoa ahurea o te hauora o te Māori (Māori cultural determinants of health)
dc.subject.anzsrc45 - Indigenous studies::4510 - Te hauora me te oranga o te Māori (Māori health and wellbeing)::451017 - Te oranga ā-pāpori, ā-hinengaro, ā-ahurea, ā-wairua o te Māori (Māori social, cultural, emotional and spiritual wellbeing)
dc.subject.anzsrc42 - Health sciences::4205 - Nursing::420502 - Aged care nursing
dc.subject.anzsrc42 - Health sciences::4203 - Health services and systems::420316 - Palliative care
dc.subject.mshHauora | Health::Ora | Alive; Living; Well-being::Hauora whānau | Whakaoranga whānau; Family health
dc.titleMāori elders’ perspectives of end-of-life family care: whānau carers as knowledge holders, weavers, and navigators
dc.typeJournal Article
uc.collegeFaculty of Arts
uc.departmentLanguage, Social and Political Sciences
Files
Original bundle
Now showing 1 - 1 of 1
Thumbnail Image
Name:
Maori elders' perspectives on end-of-life care.pdf
Size:
154.65 KB
Format:
Adobe Portable Document Format
Download
License bundle
Now showing 1 - 1 of 1
No Thumbnail Available
Name:
license.txt
Size:
3.17 KB
Format:
Plain Text
Description:
Download
Collections
Arts: Journal Articles