Developing relevant community mental health programmes in North India: Five questions we ask when co-producing knowledge with experts by experience

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dc.contributor.authorPillai , Pooja
dc.contributor.authorRawat , Meenal
dc.contributor.authorJain S, Sumeet
dc.contributor.authorMartin , Rachelle Anne
dc.contributor.authorShelly K, Kakul
dc.contributor.authorMathias, Kaaren
dc.date.accessioned2023-12-13T19:25:19Z
dc.date.available2023-12-13T19:25:19Z
dc.date.issued2023
dc.description.abstractKnowledge co-production can improve the quality and accessibility of health, and also benefit service users, allowing them to be recognised as skilled and capable. Yet despite these clear benefits, there are inherent challenges in the power relations of co-production, particularly when experts by experience (EBE) are structurally disadvantaged in communication skills or literacy. The processes of how knowledge is co-produced and negotiated are seldom described. This paper aims to describe processes of co-production building on the experiences of EBE (people with lived experience of psychosocial or physical disability), practitioners and researchers working together with a non-profit community mental health programme in North India. We describe processes of group formation, relationship building, reflexive discussion and negotiation over a 7-year period with six diverse EBE groups. Through a process of discussion and review, we propose these five questions which may optimise co-production processes in communities: (1) Who is included in co-production? (2) How can we optimise participation by people with diverse sociodemographic identities? (3) How do we build relationships of trust within EBE groups? (4) How can we combine psychosocial support and knowledge co-production agendas in groups? and (5) How is the expertise of experts by experience acknowledged?
dc.identifier.citationPillai P, Rawat M, Jain S, Martin RA, Shelly K, Mathias K (2023). Developing relevant community mental health programmes in North India: Five questions we ask when co-producing knowledge with experts by experience. BMJ Global Health. 8(8). e011671-.
dc.identifier.doihttp://doi.org/10.1136/bmjgh-2022-011671
dc.identifier.issn2059-7908
dc.identifier.urihttps://hdl.handle.net/10092/106272
dc.languageeng
dc.publisherBMJ
dc.rights© Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY. Published by BMJ. Open access This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/ licenses/by/4.0/.
dc.rights.urihttp://hdl.handle.net/10092/17651
dc.subjectHumans
dc.subjectTrust
dc.subjectMental Health
dc.subjectVulnerable Populations
dc.subjectIndia
dc.subject.anzsrc42 - Health sciences::4203 - Health services and systems::420313 - Mental health services
dc.titleDeveloping relevant community mental health programmes in North India: Five questions we ask when co-producing knowledge with experts by experience
dc.typeJournal Article
uc.collegeFaculty of Health
uc.departmentSchool of Health Sciences
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