Research Strategies to Facilitate Public Participation in Discussion of Genetic Testing and Biobanking: A Summary Research Report No. 2
This paper summarises the development and implementation of the research methodology that was primarily used in Phase One of the Constructive Conversations/ Korero Whakaaetanga project – the first eighteen months of work on the project. It outlines the methodology piloted in twenty-five focus groups/ contact groups on genetic testing and biobanking that were facilitated in late 2003 and early 2004. This is followed by a discussion of some issues which emerged as this methodology was developed and employed. A description of the characteristics of the groups who participated in this stage of the project is provided. This is followed by a summary of the strategies used in preliminary analysis of the transcripts of these interviews. Proposed plans for the next stages of the contact group process are outlined, followed by a brief discussion of some issues that have arisen during the year that are relevant to the objective of achieving greater public participation in technological decision making – one of three key objectives of this research programme. This chapter was mainly written by Rosemary Hipkins with some assistance from Rosemary Du Plessis. It draws on a more detailed paper by Rosemary Hipkins (Hipkins, 2004).
SubjectsResearch re public participation in discussion of science and technology
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