People ageing with spinal cord injury in New Zealand: a hidden population? The need for a spinal cord injury registry (2016)
Type of ContentJournal Article
PublisherUniversity of Canterbury. School of Health Sciences
AIMS: To identify and establish a research database of ageing New Zealand people who sustained a traumatic or non-traumatic spinal cord injury (SCI) before 1990. METHODS: All living New Zealand residents incurring a SCI before 1 January 1990 were eligible. A co-ordinated consultation with apposite New Zealand organisations was undertaken to identify and access existing SCI databases, and remove duplicate or ineligible records. RESULTS: 1,400 people were identified. Using the national patient information management system to determine eligibility, 1,174 people remained after exclusions; 600 (51.1%) through the Auckland Spinal Rehabilitation Unit and 574 (48.9%) through the Burwood Spinal Unit. Common to both databases were people’s National Health Index number, contact details, basic demographic data, date of injury, and neurological level of SCI. CONCLUSIONS: An unexpectedly large SCI population was uncovered; a population largely hidden due to the uncoordinated, fragmented and inconsistently collected information held within different organisations. As life expectancy rapidly increases for those with SCI, coupled with an accelerated ageing general population, this hidden SCI population can be expected to grow. A single, well-managed and coordinated national SCI registry is urgently needed in New Zealand for planning and delivery of services, especially for those developing age-related complex interwoven secondary conditions.
CitationSmaill, R., Schluter, P.J., Barnett, P., Keeling, S. (2016) People ageing with spinal cord injury in New Zealand: a hidden population? The need for a spinal cord injury registry. New Zealand Medical Journal, 129(1438), pp. 50-59.
This citation is automatically generated and may be unreliable. Use as a guide only.
ANZSRC Fields of Research11 - Medical and Health Sciences::1117 - Public Health and Health Services::111709 - Health Care Administration
Showing items related by title, author, creator and subject.
Pitama, S.; Ahuriri-Driscoll, A.L.M.; Jellie, M (University of Canterbury. Health Sciences Centre, 2001)
Hopkins WJ; Masselot, Annick (2021)
Is Preventive Treatment for Individuals With Sexual Interest in Children Viable in a Discretionary Reporting Context? Christofferson SMB (SAGE Publications, 2019)<jats:p> This study explored the viability of preventive treatment services for individuals with sexual interest in children, in jurisdictions without mandatory reporting but where risk-related disclosures to authorities ...