Late cochlear implanted adults with prelingual deafness in Southern New Zealand: exploring their long-term needs

Abstract

Background: To date, there is a lack of research that has focused on the needs of late cochlear implanted adults with prelingual deafness. The specific study aims were: (1) to explore the met and unmet long-term needs of late cochlear implanted adults with prelingual deafness from their own perspectives and those of the employees at SCIP; and 2) to identify a consensus of the most important met and unmet long-term needs of late cochlear implanted adults with prelingual deafness.

Method: This study used a modified Delphi technique with two rounds. In the first round, nine adults who were considered experts on this topic participated in semi-structured in-depth interviews. The participants were five late cochlear implanted recipients with prelingual deafness who were involved in the Southern Cochlear Implant Programme in New Zealand, and four clinicians from the programme. The interview transcripts were analysed using qualitative content analysis. The results from the first round were used to inform the development of the survey for the second round. The second round of the study involved surveying the same participants who participated in the first round. These surveys were quantitatively analysed so as to discover which needs were considered important and met, and important and unmet for the cochlear implant recipients, from the perspectives of the two categories of participants.

Results: The first round of the study revealed 42 met needs and 39 unmet needs that fell into 15 categories. Of these needs, 26 met needs and 18 unmet needs were identified as being important by a majority of the participants in the second round.

Conclusion: The results from the study may impact potential CI recipients’ and their families’ expectations of what the device can provide, as well as the development of future services and governmental policies in the area.