Talking About Genetic Testing: Information for Participants
Participation Sub-team, Constructive Conversations/Korero Whakaaetanga Research Project
This document is a summary of discussions about genetic testing and the storage of genetic information in 25 focus groups facilitated in 8 different locations by members of the FRST funded Constructive Conversations/Korero Whakaaetanga research team in Aotearoa/New Zealand between October 2003 and May 2004. Discussion in these groups was prompted by three scenarios relating to genetic profiling, direct to consumer genetic testing and biobanking. In some of the groups all three scenarios were used, in others one or two were used to prompt discussion.